Relationship of family management with sociodemographic aspects and children’s physical dependence in neurological disorders

Weissheimer, Gisele; Mazza, Verônica de Azevedo; Lima, Vanessa Ferreira de; Mantovani, Maria de Fátima; Freire, Márcia Helena de Souza; Guimarães, Paulo Ricardo Bittencourt

doi:10.1590/1518-8345.2494.3076

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Original Articles • Rev. Latino-Am. Enfermagem 26 • 2018 • https://doi.org/10.1590/1518-8345.2494.3076 linkcopy

Relationship of family management with sociodemographic aspects and children’s physical dependence in neurological disorders^*

Authorship SCIMAGO INSTITUTIONS RANKINGS

Objective: To investigate the relationship of family management with sociodemographic and physical dependence aspects of children and adolescents with neurological impairment.

Method: Descriptive, cross-sectional study conducted at a child neurology center. A non-probabilistic sample was obtained from 141 family members who answered two instruments: a) Sociodemographic condition of families; b) Family Management Measure. In the statistical analysis, we used the Spearman Coefficient and the Mann Whitney Test.

Results: the longer the specialized care time, the lower the identity score (rs = - 0.209, p = 0.01); the higher the effort score (rs = 0.181, p = 0.03), the family difficulty score (rs = 0.239, p = 0.001) and the impact of the disease on family life (rs = 0.213, p = 0.01). The families of children and adolescents with physical dependence for activities of daily living presented a higher score in the following dimensions: management effort (<0.001), family difficulty (p = 0.004) and perception of disease impact (p = 0.001).

Conclusion: There was evidence of a correlation between management with sociodemographic and child dependence aspects, with an association between management difficulty and longer time of child and adolescent care.

Descriptors:
Family Nursing; Disable Persons; Child; Adolescent; Neurology; Family

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Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo Av. Bandeirantes, 3900, 14040-902 Ribeirão Preto SP Brazil, Tel.: +55 (16) 3315-3387 / 3315-4407 - Ribeirão Preto - SP - Brazil
E-mail: rlae@eerp.usp.br

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[TFN1] *SD - Standard Deviation; †CCG - Continuous Care Grant; ‡Refers only to those who were dependent on one or more activity of daily living

Variable	.n (%)	Mean (SD)*	Minimum-Maximum
Age (years) of family members
21 to 30	25 (17.73)
31 to 40	69 (48.94)
41 to 60	47 (33.33)	37.8 (8)	21-60
Sex of family members
Female	121 (85.82)
Male	20 (14.18)
Kinship of family members with the child/adolescent
Mother	117 (83)
Father	19 (13)
Others	5 (4)
Age (years) of children/adolescents
02 - 10	84 (60)
11 - 17	57 (40)	9.5 (3.8)	0.5-17
Sex of children/adolescents
Female	47 (33.00)
Male	94 (67.00)
Time (years) of care of children/adolescents in the specialty of neuropediatrics
<01	9 (6.40)
01 - 02	22 (15.60)
03- 04	34 (24.10)
05- 09	41 (29.10)
10 and >	34 (24.10)
Do not know	1 (0.70)	6.9 (4.3)	6-17
	Yes
Access to CCG^†	70 (49.6)
Public access to medication	62 (44)
Access to the public transport fare exemption	19 (13.5)
Physical dependence of children/adolescents in activities of daily living (n=93)^‡
Feeding	53 (56)
Hygiene	76 (81)
Grooming	79 (84)
Bladder and bowel eliminations	56 (60)
Mobility	57 (61)
Locomotion	59 (63)

Dimension	n	Mean (SD)*	Minimum-Maximum
Child’s identity	141	15.9 (5.43)	5-25
Management ability	141	45.4 (6.24)	26-60
Management effort	141	13.2 (4.40)	4-20
Family difficulty	141	34.9 (12.84)	14-68
Mutuality between parents	113	34.6 (5.67)	9-40
Perception of disease impact	141	25.8 (6.47)	12-42

Dimension	.n	Rho*	p
Child’s identity	141	-0.209	0.01
Management ability	141	-0.041	0.62
Management effort	141	0.181	0.03
Family difficulty	141	0.239	0.004
Mutuality between parents	113	0.116	0.22
Perception of disease impact	141	0.213	0.01

Dimension	C*	Feeding			Grooming			Hygiene			Bladder and bowel eliminations			Mobility			Locomotion
Dimension	C*	n	Mean (SD)^†	p^‡	n	Mean (SD)^†	p^‡	.n	Mean (SD)^†	p^‡	n	Mean (SD)^†	p^‡	n	Mean (SD)^†	p^‡	n	Mean (SD)^†	p^‡
Child’s identity	I^§	88	17,6 (5,44)	<0.001	62	18,4 (5,45)	<0.001	65	18,4 (5,23)	<0.001	85	17,8 (5,18)	<0.001	84	17,7 (5,26)	<0.001	82	17,8 (5,29)	<0.001
Child’s identity	D^¶	53	13,2 (4,18)	<0.001	79	14,0 (4,55)	<0.001	76	13,8 (4,67)	<0.001	56	13,1 (4,52)	<0.001	57	13,3 (4,52)	<0.001	59	13,3 (4,48)	<0.001
Management ability	I^§	88	46,5 (6,28)	0,001	62	47,1 (5,84)	0,003	65	47,1 (6,04)	0,003	85	46,2 (6,2)	0,05	84	46,2 (6,02)	0,05	82	46,2 (6,13)	0,06
Management ability	D^¶	53	43,5 (5,76)	0,001	79	44,1 (6,26)	0,003	76	44,0 (6,09)	0,003	56	44,2 (6,17)	0,05	57	44,3 (6,44)	0,05	59	44,3 (6,28)	0,06
Management effort	I^§	88	11,8 (4,45)	<0.001	62	10,7 (4,27)	<0.001	65	11,1 (4,37)	<0.001	85	11,9 (4,4)	<0.001	84	12,0 (4,48)	<0.001	82	12,0 (4,52)	<0.001
Management effort	D^¶	53	15,5 (3,20)	<0.001	79	15,2 (3,41)	<0.001	76	15,0 (3,54)	<0.001	56	15,2 (3,61)	<0.001	57	15,0 (3,62)	<0.001	59	14,9 (3,67)	<0.001
Family difficulty	I^§	88	32,1 (12,9)	<0.001	62	30,1 (12,1)	<0.001	65	30,4 (12,7)	<0.001	85	31,9 (12,4)	<0.001	84	32,5 (12,6)	0,004	82	32 (12,6)	<0.001
Family difficulty	D^¶	53	39,6 (11,2)	<0.001	79	38,7(12,11)	<0.001	76	38,8 (11,7)	<0.001	56	39,5 (12,1)	<0.001	57	38,4 (12,3)	0,004	59	38,9 (12,0)	<0.001
Mutuality between parents	I^§	71	35,3 (5,49)	0,08	48	35,2 (4,59)	0,76	52	35,2 (5,54)	0,37	67	35,0 (5,49)	0,45	67	35,1 (5,52)	0,28	67	35,1 (5,52)	0,28
Mutuality between parents	D^¶	42	33,4 (5,84)	0,08	65	34,1 (6,35)	0,76	61	34,0 (5,76)	0,37	46	33,9 (5,93)	0,45	46	33,8 (5,85)	0,28	46	33,8 (5,85)	0,28
Perception of disease impact	I^§	88	23,7 (6,39)	<0.001	62	23,0 (6,5)	<0.001	65	22,8 (6,42)	<0.001	85	23,8 (6,14)	<0.001	84	23,7 (6,23)	<0.001	82	23,7 (6,3)	<0.001
Perception of disease impact	D^¶	53	29,2 (5,03)	<0.001	79	28,0 (5,56)	<0.001	76	28,3 (5,36)	<0.001	56	28,8 (5,80)	<0.001	57	28,8 (5,54)	<0.001	59	28,6 (5,63)	<0.001

Dimension	Condition	CCG*			Transportation Fare Exemption			Medicine
Dimension	Condition	.n	Mean (SD)^†	p^‡	.n	Mean (SD)^†	p^‡	.n	Mean (SD)^†	p^‡
Child’s identity	Receive	71	16,7 (5,69)	0,11	122	15,9 (5,37)	0,75	79	16,9 (5,39)	0,02
Child’s identity	Do not receive	70	15,1 (5,06)		19	15,8 (5,91)		62	14,7 (5,27)
Management ability	Receive	71	46,7 (5,9)	0,01	122	45,8 (6,09)	0,02	79	46,3 (6,14)	0,05
Management ability	Do not receive	70	44,1 (6,34)		19	42,6 (6,67)		62	44,2 (6,21)
Management effort	Receive	71	12,3 (4,47)	0,01	122	13,0 (4,5)	0,13	79	12,3 (4,48)	0,003
Management effort	Do not receive	70	14,2 (4,15)		19	14,7 (3,45)		62	14,4 (4,04)
Family difficulty	Receive	71	32,0 (12,51)	0,004	122	34,5 (12,98)	0,31	79	33,4 (13,52)	0,071
Family difficulty	Do not receive	70	37,9 (12,56)		19	37,5 (11,88)		62	36,8 (11,75)
Mutuality between parents	Receive	62	34,7 (5,69)	0,82	100	34,5 (5,65)	0,5	65	34,9 (4,6)	0,83
Mutuality between parents	Do not receive	51	34,4 (5,7)		13	35,2 (6,03)		48	34,1 (6,88)
Perception of disease impact	Receive	71	24,1 (6,22)	<0.001	122	25,7 (6,72)	0,7	79	25,2 (6,67)	0,16
Perception of disease impact	Do not receive	70	27,5 (6,31)		19	26,2 (4,63)		62	26,5 (6,17)

Relationship of family management with sociodemographic aspects and children’s physical dependence in neurological disorders*

Relationship of family management with sociodemographic aspects and children’s physical dependence in neurological disorders^*