Nursing consultation protocol for supported self-care for people with Parkinson’s disease

Couto, Alcimar Marcelo do; Alvarez, Angela Maria; Tavares, Darlene Mara dos Santos; Tosin, Michelle Hyczy de Siqueira; Soares, Sônia Maria

doi:10.1590/0034-7167-2024-0495

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Table of contents

ORIGINAL ARTICLE • Rev. Bras. Enferm. 78 (suppl 4) • 2025 • https://doi.org/10.1590/0034-7167-2024-0495 linkcopy

Nursing consultation protocol for supported self-care for people with Parkinson’s disease

Protocolo de consulta de enfermería para el autocuidado con apoyo para personas con enfermedad de Parkinson

Authorship SCIMAGO INSTITUTIONS RANKINGS

Objectives: to develop and validate the content of the Nursing Consultation Protocol for Supported Selfcare in People with Parkinson’s Disease.

Methods: this methodological study was conducted in two stages: protocol development and content validation. Relevance and clarity were assessed using the Delphi technique. After evaluating the protocol instruments, the Content Validity Index was calculated.

Results: an integrative review and a documental study characterizing older people with Parkinson’s disease guided the protocol development. The final version comprises 6 sections, 29 topics, and 14 subtopics. The Content Validity Index was high in the first round (0.94) and increased to 0.99 after refinements.

Conclusions: the expert panel deemed the protocol content valid in terms of relevance and clarity. Further research is recommended to assess its clinical validity.

Descriptors:
Nursing; Nursing Process; Self Care; Parkinson Disease; Validation Study.

Variables	Delphi round
Topics	1st round		2nd round
Topics	Total	Action taken	Total	Action taken
Protocol title*	0.92	Adapted	0.92	Accepted
Part I: Scope and Purpose
Background	1.00	Accepted	1.00	Accepted
Protocol purpose	1.00	Accepted	1.00	Accepted
Intended audience	1.00	Accepted	1.00	Accepted
Setting*	0.83	Adapted	1.00	Accepted
Target population*	0.92	Adapted	1.00	Accepted
General guidelines*	0.92	Adapted	0.92	Accepted
Flowcharts for promoting supported self-care*	0.75	Adapted	0.92	Accepted
Part II: Theoretical and methodological framework
Supported self-care*	1.00	Adapted	1.00	Accepted
Nursing process	1.00	Accepted	1.00	Accepted
Part III: Nursing consultation for promoting supported self-care in Parkinson’s disease
First NP stage - Nursing history*	0.83	Adapted	1.00	Accepted
Second NP stage - Nursing diagnosis	1.00	Accepted	1.00	Accepted
Third NP stage - Nursing planning	1.00	Accepted	1.00	Accepted
Fourth NP stage - Nursing implementation	1.00	Accepted	1.00	Accepted
Fifth NP stage - Nursing evaluation	1.00	Accepted	1.00	Accepted
Supported self-care - Assessment*	0.92	Adapted	1.00	Accepted
Supported self-care - Agreement	1.00	Accepted	1.00	Accepted
Supported self-care - Advice*	0.75	Adapted	0.92	Adapted
Supported self-care - Assistance	1.00	Accepted	1.00	Accepted
Supported self-care - Follow-up	1.00	Accepted	1.00	Accepted
Part IV: Appendices
Nursing history instrument
Identification*	0.92	Adapted	1.00	Accepted
Interview/physical examination - General conditions*	0.92	Adapted	1.00	Accepted
Application of standardized assessment scales*	0.83	Adapted	1.00	Accepted
Assessment of motor symptoms*	0.83	Adapted	1.00	Accepted
Assessment of non-motor symptoms*	1.00	Adapted	1.00	Accepted
Assessment of therapy-related complications	1.00	Accepted	1.00	Accepted
Pharmacological therapy	1.00	Accepted	1.00	Accepted
Non-pharmacological therapy	1.00	Accepted	1.00	Accepted
Perception/communication*	0.92	Adapted	1.00	Accepted
Skin and mucosal integrity*	1.00	Adapted	1.00	Accepted
Sexuality	1.00	Accepted	1.00	Accepted
Leisure/physical activity/spirituality	1.00	Accepted	1.00	Accepted
Assessment of social and family situation*	1.00	Adapted	1.00	Accepted
Environmental assessment*	1.00	Adapted	1.00	Accepted
Nursing diagnoses	1.00	Accepted	1.00	Accepted
Individualized care plan	1.00	Accepted	1.00	Accepted
Individualized supported self-care plan*	1.00	Adapted	1.00	Accepted
Part V: Attachments
Revised Self-Care Capacity Assessment Scale	0.92	Accepted	0.92	Accepted
Hoehn and Yahr Scale - motor staging*	0.92	Adapted	1.00	Accepted
Clinical-Functional Vulnerability Index	0.92	Accepted	0.92	Accepted
Functional assessment	0.92	Accepted	0.92	Accepted
Cognitive assessment*	0.75	Adapted	1.00	Accepted
Total CVI	0.94		0.99

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Associação Brasileira de Enfermagem SGA Norte Quadra 603 Conj. "B" - Av. L2 Norte 70830-102 Brasília, DF, Brasil, Tel.: (55 61) 3226-0653, Fax: (55 61) 3225-4473 - Brasília - DF - Brazil
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Items assessed by the experts in both rounds.