Experiences of illness among individuals with sickle cell anemia and self-care strategies

Abstract

Objective  To determine the experience of sick individuals with sickle cell anemia and their self-care strategies.

Methods  This was a qualitative study of 17 individuals with sickle cell anemia. Data collection and analysis occurred simultaneously by open codification and categorization, according to steps in the theory based on data. This procedure led to the development of categories related to the experience of individuals who have sickle cell anemia and their self-care.

Results  Experiences of patients who became chronically ill enabled the construction of strategies to better determine the disease, changes in daily life, and the manner in which it affects how patients observe and experience time. Also identified were specific skills for self-care that were developed from lessons learned and mistakes made.

Conclusion  We found that individuals with sickle cell anemia had several favorable approaches for adapting to having become sick during adulthood.

Self care; Anemia, sickle cell; Qualitative research; Sick role; Quality of life