@article{hendriksz_christine_coker_ucar_jain_bell_lampe_2014,  title={The Burden Endured by Caregivers of Patients With Morquio A Syndrome: Results From an International Patient-Reported Outcomes Survey},  volume={2},  ISSN={2326-4594},  url={https://doi.org/10.1177/2326409814540872},  DOI={10.1177/2326409814540872},  journal={Journal of Inborn Errors of Metabolism and Screening},  publisher={Latin American Society Inborn Errors and Neonatal Screening (SLEIMPN); Instituto Genética para Todos (IGPT)},  author={Hendriksz, Christian J. and Christine, Lavery and Coker, Mahmut and Ucar, Sema Kalkan and Jain, Mohit and Bell, Lisa and Lampe, Christina},  year={2014},  pages={e140003} }