@article{juliano_silveira_aureliano_wernet_charepe_2026,  title={THE HOPE OF THE FAMILY FROM THE PERSPECTIVE OF MOTHERS OF CHILDREN WITH RARE DISEASES},  volume={35},  ISSN={0104-0707},  url={https://doi.org/10.1590/1980-265X-TCE-2025-0044en},  DOI={10.1590/1980-265X-TCE-2025-0044en},  journal={Texto & Contexto - Enfermagem},  publisher={Universidade Federal de Santa Catarina, Programa de  Pós Graduação em Enfermagem},  author={Juliano, Nina de Almeida and Silveira, Aline Oliveira and Aureliano, Ana Paula Sarmento Charão and Wernet, Monika and Charepe, Zaida Borges},  year={2026},  pages={e20250044} }